I first heard about Project Believe earlier this year via another PMS mom in Canada. I contacted the author, and as luck would have it, she had planned to be in Los Angeles in June. We were honored to have met with her and to have been included in the project.
The author, Karen Haberberg, is a NYC photographer that has been moved to help those of us that are dealing with rare genetic conditions. The Kickstarter video below explains it all, much more eloquently than I can:
Please watch the video and if you are able, please consider backing the project!
#careaboutrare #phelanmcdermidsyndrome #globalgenes #globaldevelopmentaldelay