Stanford Research Study

It’s been nearly two years since Darus was diagnosed with Phelan McDermid Syndrome.  The last two years have not been easy, but we’ve had no choice but to keep pushing forward.  At times it feels like we’re stuck in survival mode, but there are also times of unbridled joy and living in the present moment.  We have learned so much from Darus, yet we have a long way to go! 

We were afforded a wonderful opportunity this past weekend to participate in a research study that will hopefully help improve the lives of families like ours that are affected by this condition.  We took the scenic route to and from Stanford and made many stops along the way as you'll see in the photos.  We met w/ geneticist Dr. Jon Bernstein and psychologist Dr. Jennifer Phillips.  Thank you to everyone, near and far that made this possible. 

I would also like to take this time to encourage any Amazon users to please register your account to support the Phelan McDermid Syndrome Foundation.  Thank you for your support.

With love & gratitude,

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